My husband is an 8-year survivor of testicular cancer. During his treatment (multiple rounds of chemo), he rode his bike everyday and started the nonprofit, Blood + Sweat + Chemo, to help raise money for The LiveStrong Foundation. Now, 8 years later, we are raising money again. This time for The Leukemia & Lymphoma Society….
Our five-year-old daughter, Lucy, was born with a brain injury, Hypoxic Ischemic Encephalopathy (HIE). A common secondary diagnosis for kids with HIE is epilepsy, and Lucy was recently diagnosed with a rare form known as Electrical Status Epilepticus in Sleep, or ESES for short. Due to its rare nature, we sought treatment for Lucy from…
When Doug was just 5 years old he was diagnosed with childhood cancer that spread mostly throughout his pancreas, stomach, and other parts of his abdomen.
Sonny Mead was born with a condition called craniosynostosis. When he was less than 6 months old he had a surgery to hopefully correct this condition. This little guy is full of so much life and wins the hearts of everyone he interacts with.
Blake is a 7 year old boy who was born with a rare genetic disease called Fanconi anemia. He was recently in severe bone marrow failure and required a bone marrow transplant. A transplant meant spending 40+ days at Seattle Children’s Hospital.
Cut it out! is a campaign launched to spread awareness about epilepsy, surgery for epilepsy, and to support the Claudio Munari Surgery Center for Epilepsy, an international center for epilepsy located at the Niguarda Hospital in Milan, Italy. We suddenly met epilepsy in 2013, during our summer holidays. Out of the blue. Till that moment…