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Raising Money for Lucy

Our five-year-old daughter, Lucy, was born with a brain injury, Hypoxic Ischemic Encephalopathy (HIE). A common secondary diagnosis for kids with HIE is epilepsy, and Lucy was recently diagnosed with a rare form known as Electrical Status Epilepticus in Sleep, or ESES for short. Due to its rare nature, we sought treatment for Lucy from…

Cut It Out! Shirts Raise Money & Awareness For Epilepsy

Cut it out! is a campaign launched to spread awareness about epilepsy, surgery for epilepsy, and to support the Claudio Munari Surgery Center for Epilepsy, an international center for epilepsy located at the Niguarda Hospital in Milan, Italy. We suddenly met epilepsy in 2013, during our summer holidays. Out of the blue. Till that moment…